Celebrating 100 blog entries and 20 years on the internet

Happy 100 blog entries and 20 years on the internet!

A happy celebration for today!

I’m excited to say I’ve posted 100 blog entries on this site and it just so happens to correspond with me having the internet for almost 20 years.

I was born way before the internet and due to the type of rural life we led, we didn’t have a phone growing up and sometimes we didn’t have TV. Even going to the library was a treat. As a young adult, I didn’t have a normal college education, but I taught myself anything I wanted to know.

After a few years of the internet coming to homes, in June 1996 (almost 20 years ago) my ex and I purchased a brand new computer and signed up for our first account through AOL. I took to it immediately. I had used computers for years at work, but having the internet at home was a brand new world.This was amazing! I spent years learning everything I could from the internet.

I wanted to learn everything and even learned how to make my own webpages. I took C++ and all kinds of computer classes.

I started making little 5 page websites for CVs and resumes, and charged $25 per page, plus extra for photos. As the blogs became more important to people, my upper income was $30 per page for a 5 page website. I expanded and created pages for families and photographers looking for places to store their work. My favorite website was created for a Veteran who passed away. He was a WWII Veteran and his family wanted something special for his funeral. The funeral home had the internet, so I created a full webpage, 10 pages, with his career, family photos, his career photos, and so much more (I did this for free because he was a WWII Veteran and I’m a Veteran). His family brought a computer to the funeral home and his extended family and friends were able to enjoy his childhood and career memories like never before.

With the personal websites and CV websites I created, I also started accepting a few business clients. I was making a few hundred dollars a month. I never claimed to be anything I wasn’t. I was the small business webpage designer for those businesses who were just starting out. I was a busy mom and wife, so I could only accept a few pages at a time, so personal attention to each one was important. The clients really liked that. Making these little websites was extra money for our family. My work was growing and people started requesting me.  I thought that was pretty cool for a farm girl.

Through many late nights and just plain stubbornness I eventually earned my college degree in May 2002. At that time, I was a 34 year old single parent and I finally had the coveted piece of paper I had wanted since I was little. That one piece of paper opened many doors. Using my internet skills, I started working on more classes, and even though I haven’t finished my graduate degree, I actually have two graduate degree paths I’ve almost completed.

When I retired from the Army, in 2014, I realized my writing skills were severely lacking. During my career I picked up some really bad writing habits and I wanted to correct those mistakes. Most people don’t realize, in the military we write in simple sentences, bullets, and blurbs, anything else is turned away and considered “flowery.” After a lifetime of writing this way, I knew I needed help. There was only one problem. Due to my degree path, foundation writing courses, or actually any writing courses, would not be paid for through my GI Bill. I was on my own. I searched and searched and ended up taking many free courses on Coursera, Khan, and even You Tube. I’m still not up to the standard of where I wish I was, or need be, but I’m better than I was last year, and that is progress.

During the process of learning to write better, I wanted to also start a new blog. I wanted something that reflected my new retired life.

I’ve kept personal blogs before, but they were used for a daily journal and, before bookmarking or Pinterest, they were also used as a place to keep my favorite links. I never went beyond the “one page” blog. I didn’t even know how to. I knew how to load photos on many pages, or information, but not how to create drop-downs for more information. After some work in 2014 and watching as many free courses on You Tube as I could, I started a brand new blog in 2015. This wasn’t in E-blogger, like I had used before, and it wasn’t “Webs”, which I also knew how to use, but this was WordPress. This was a horse of a different color.

Basically, I was starting from scratch. I had to learn everything all over again. I had to understand categories, drop downs, widgets, and so much more. I even took a long break from my blog because I didn’t think I would ever learn how to use it. While facing many physical ailments and feeling sorry for myself, I figured this was just too much to learn at this time. I became really frustrated with myself for giving up, so I jumped right back in and learned more. I figured even if I was the only one who read this blog, I was going to learn to use it and I was also going to learn to write a book. Again, even if I was the only one who read it, I was going to write it.

During 2015 and the winter of 2016 year I also met some wonderful people. These were people different from my military career (some crossed over, but not all). These were writers, artist, filmmakers, and bloggers. They encouraged me to keep doing what I was doing and not give up. I took their advice and kept going.

This week I received a message from WordPress that I had 100 public blog entries (I have some private ones also), and I rejoiced. That little message meant I was learning how to use this silly blog thing and I could learn more.

In the background, I’ve also been working on my book a little at a time, and putting in the effort to create some YouTube videos of my very own. Without actually going to a real school, I’ve used my personal time in 2015 and 2016 to learn various means of communication and I’ve experimented with different  styles. In just over one year I’ve learned more blogging skills, how to use more social media sites, how to create short videos, how to write a book, and I’ve learned an abundance of background information that makes all of these things work together.

I say all of this to remind those who want to give up; don’t. Just don’t. This advice is from a 48 year old disabled woman, who grew up in the backwoods of NC and had very little access to technology as a child or young adult. Now, I’ve been on the internet almost 20 years and for my first “real” blog, I now have 101 public blog entries. Is it perfect? No. It isn’t. I have a very long way to go.

I know there are times when my writing sucks. My editing is terrible, my punctuation needs tons of help, and my sentence structure sometimes resembles examples from my 7th grade book reports, but my friends and family have continued to read my work and support my dreams, so I’m gonna stick with it and I’m not giving up.

It’s like the first time someone tries to create something great from clay. More than likely, the first few times, they will end up with a big pile of clay. Eventually, if they stick with it, and keep their hands dirty, they can throw some fantastic pieces of pottery. I’m not giving up just because I created a few piles of clay instead of works of art.

It’s hard, frustrating, and at times, it seems impossible, but whatever you do, don’t give up the dream. Even if you have to take breaks or scream at the computer, don’t give up. (I’m so glad my computer can’t repeat everything I’ve screamed at it).

It takes a lot of hard work, determination, and many long hours of practice to create something worthwhile. If you are creating art, film, writing a book, keeping a blog, or as my friend is doing, learning a new instrument later in life, just stick with it. These new talents will eventually click.

Thank you to all those who support me, encourage me, and those who given me a big kick in my rear-end when I needed it. I plan to remain part of our creative family for a very long time. The world needs more creative people. One day, I hope to be considered one of those creative people who made a difference.

 

Until next time…be safe, be kind, and always be happy.

 

A Writer’s Internet Search History: How many “watch lists” are you on?

In one week, I’ve searched the following terms;

Worm farming, honey suckle, auto trader, sex trafficking, UFOs, ancient aliens, mold and stain remover, being naked in your home laws, naked gardening day, bathroom gender laws, cornbread recipes, increase your level of Vitamin D, length of time for a body to decompose, and human survival time without breathing.

How have I survived the week without the FBI knocking down my door?

Hey, Stargate SG1 is also in my search history, so it isn’t all bad.

BTW — Very few of these subjects were related to the other, but, when taking out of context, I would hate to see what a jury would say about this.

Hummm…. Opening another tab and now I’m searching, “How to search “incognito?”

Until next time…be safe, be kind, and always be happy.

(and use incognito when researching stories)

Sensory Overload: Pop-up ads and auto-play videos drive me bonkers

I have sensory issues. I’ve always had them and I always will. No matter what label or diagnosis those types of issues are listed under, I have them all. Smells, taste, sounds, jerky motions, a combination of certain colors and/or lights, and even the feel of certain materials, will drive me crazy and can make me physically sick.

In spite of literally hating the sound of someone (or an animal) crewing or drinking loudly, and dealing with all stupid MTHFKRing smells in a big box store (to the point of getting migraines from Fabreez), I managed to become a very successful adult. I learned to deal with strong smells by knowing exactly what detergent I wanted and needed, holding my breath, and running to the exact spot to get what I want and get the hell away from the rest of them. In church, or social gatherings, I started sitting alone,  or very far away, from the Avon ladies, who pour on perfume like a teenage boy who uses Ax deodorant. Flashing lights of certain colors don’t send me into seizures as some people, but they irritate me to the point of being physically sick. Even the mixture of certain colors in certain patterns (where they play off of each other) can start my head spinning and I feel nauseous to the point of either turning my head from the colors or leaving the area completely. I never really paid attention to which colors, or the combination of colors, make me sick, I just started avoiding things that I knew my brain physically hates.

I’ve learned to avoid offending smells, but others find it kind of crazy the things that make me sick and those that don’t. Natural bodily odors, from someone who hasn’t taken a shower in a week, does not bother me. The smell of dirt and manure, even when freshly laid on a farm, does not bother me either. But someone, who recently used body wash, shampoo, deodorant, hair spray, perfume, body spray, and tons of makeup, can give me a quick hug and I will almost pass out from pain that immediately washes over me. At the very least, I’ve had to go home early after an encounter such as this, but in the worst case scenario, I’ve actually landed in the ER from this exact kind of situation.

It’s very hard to get most people to understand I can’t use their lotions, purchase their monthly sales perfume, or use the new essential oil of the month, because, unlike them, their innocent little bottle can land me in the hospital, followed by bed-rest for 3 days and a “pain hangover” for 2 more days. I can literally lose a week of my normal life just by using a co-worker’s peach-strawberry-lavender name brand lotion. (AND No. Just because it’s hypo-allergenic does not mean it’s is made for people with over-sensitive senses).

I’m not the only person this happens to and there are way more of us than most people realize. Most of us only complain about our over-sensitive senses when we are trying to escape from the offender causing the reaction. We politely excuse ourselves, meltdown avoided, no need to talk about it further. Most people, like me, do the same thing. Why should we complain, when we can just change our own habits?  I don’t complain that another person’s perfume makes me sick, I get up and move away. I don’t complain someone’s loud chewing makes me want to scream, I get up and find somewhere else to sit.

I’ve been able to control what I smell or don’t smell, what I touch and don’t touch, what I hear or don’t hear (my gosh, certain sounds can really drive me as crazy as a mad hatter), and even what I see or don’t see. Except, with the last one, the internet (which I use every damn day) has taken it’s love for smashing colors and sounds together, to a whole new excruciating level.

I’ve managed to survive this long in the normal world, so I’m sure I’ll find ways to hang on a while longer,  but the continuous evolution of the internet is making it harder and harder to avoid these issues.

The amount of sights and sounds on most pages are enough for me to turn off my sound and turn down the brightness of my screen for a short time (I’ve even been known to try out new colors just to get a break from the overload of so many colors bombarding me at once).

I don’t know if I’m just over the top sensitive to these types of things or do page owners just don’t care how others perceive their content? There are so many ads on some websites, I refuse to visit the websites or share the websites. I know there are others out there, like me, who don’t want their day ruined from a migraine, irritability, or upset stomach, all due to someone who over loaded their page with more ads than content, so I’m not sure why it continues to get worse. I would guess these pages must make a ton of money with this tactic or they wouldn’t keep it up.

The click-bait pages are the worst. I’ll search for something online and think I’ve found something interesting to read, but in reality the link creators either faked the thumbnail and the content has zero to do with the headline or they have so much click bait going on, the content becomes irreverent. I doesn’t matter how interesting an article is if a reader never reads it. Very few people really enjoy wading through an enormous amount of ads just to read less than 1000 words of content.

The two I hate most are pop-up and auto-play ads. There’s no way to stop them or click out of them (especially since the x is so tiny and anywhere you click you basically opens the damn ad and this either slows down your computer or downloads the black screen of death on your computer.) If it’s an auto-play ad at least I can turn off my sound and ignore it, but the pop-up ads are super annoying. I understand content creators need to make money and obviously people need your information, or I wouldn’t have needed your page, but somewhere in the mix, a compromise needs to be reached.

Paid content is an option. Just like magazines, there are people who will pay for real content, just to avoid the intrusion of ads popping up. The plus side of online subscription is, there are zero perfume samples in them (my gosh I hate those and yes, I get physically ill when a random one arrives in my mailbox. The entire magazine goes straight to the trash) and they are environmentally friendly!

Another option is allowing the writers of websites to make extra income by finding and selling sponsorship ads. The writers could then make a percentage of the sponsorship they sell. These types of ads are small  advertisements, nicely placed in a non-intrusive manner, purchased by companies who support the site and the content.

I hope to one day make a small income from my words, but not in a manner which shouts, screams, or throws sounds at my readers before they get to the first word. There are many things I do wrong on my blog; I cuss, I’m pretty terrible at grammar, and my spelling is atrocious, but I promise I’m not going to set up ads to scream at my readers to make a few dollars.

At the moment, I have no ads on my blog (and I try not to share links which are full of ads). This was set up as much for me as it was for my readers. Sure, I could set up pop-up ads and banner ads, but those things not only distract the readers from my content I want them to enjoy (um, you know, the reason for setting up a blog in the first place), but they also distract me from my own page.

I want my readers to enjoy my content and maybe learn a few things along the way, not get angry and upset due to a bunch of random advertisements.

One day I hope to add legitimate paid sponsors,  and maybe even add a few affiliate links, but when I do, these will be non-intrusive. They will be created in a comfortable reading style, not created as pop-up ads which could irritate or anger my readers.

After a long day of dealing with the perfume sales people in the mall, those stupid, stupid, auto commercial thingies in big box stores, and living in a world where polyester is a real thing, it’s nice to be able to click on a link and not get bombarded with lights, sounds, and colors which can’t be turned off.

To any content creator, who includes ads to the left, right, or even at the top of your website, here is a resounding, “THANK YOU!” From those of us who already have trouble focusing, you are our friend.

Let’s hope more webpages will follow your lead.

Until next time…be safe, be kind, and always be happy.

My Pet Chicken and The Rainbow Bridge

Beard Lady and Me

Just an update on Bearded Lady, she’s very sick and won’t be with us very much longer. She’s receiving great care and her favorite treats every day. I love her dearly and it’s my pleasure to give her all the happiness in the world.

Beard Lady and watermelon

Pets come into our lives and bring us joy with their feathers and fur, and even scales, so it’s our responsibility as owners to respect them as they make their way across the rainbow bridge.

I post this not to bring too many tears, but to show, in the right home, chickens are just as loved as any other pet. They are sweet, kind, smart, and loving. If you have a child allergic to cats or dogs, maybe they need a lovely chicken in their lives.

Chickens can be taught tricks and will follow their loved one everywhere. They can even take baths when needed. In fact, if they are raised to take baths, they actually kind of like it (or at least they will tolerate and not fight it too much). They don’t take up much room and will snuggle with you just like a cat or dog.

Bearded Lady sick

 

Although Bearded Lady has been with us for only 1 year, she brought so much happiness to me and my family. She will be missed very much.

On Wednesday I’ll be contacting the right people to help me give her a peaceful rest. I will be by her side letting her know she was loved.

 

Until next time…be safe, be kind, and always be happy.

Amazon Book Reviews; Authors need them to succeed

Amazon Book Reviews

I learned something incredibly important today; reviews on Amazon (and other book provider websites) are necessary to increase the success of an author. This applies to all authors, but especially indie authors.

If you take the time to read a book, a comic book, purchase a coloring book full of curse words, or you know how to read one of those super technical books that include a table of contents a mile long, this blog entry is for you.

Self-published author (and cosplayer extraordinaire) @Robin Burks explains the need for personal book reviews on Amazon. She is the only reason I understand this subject now.

Check out her recent blog post http://www.robin-burks.com/2016/05/the-importance-of-reviews/

** Robin’s self-published works can be found here; http://www.robn-burks.com/ and Twitter contact is @sunriserobin – She’s really cool. Give her a shout out. I’ll wait. **

Now, back to the importance of book reviews.

Not only are reviews a nice way to tell an author how much you enjoyed a book, but authors need reviews to progress to the next stage of online publishing. The reviews can also help an author reach a wider audience by allowing the book to be accepted by other online sales sites.

Personally, I had no idea how important book reviews meant to authors (even famous authors) to progress through the Amazon equation of what makes a “hit book.”

I’m a huge advocate of indie writers and filmmakers. I like supporting the writers, artists, and entertainers I enjoy, including brand new entertainers, so this information was important to me.

If we readers want to see a wider variety of work on the market, we have to take the time to do what is necessary to help the creative artists reach the same limits of big corporate works. This doesn’t mean not supporting big productions, but it also means we have one more way to support those who are are just starting out. What this means for us as readers is we take a few more minutes of our time and leave feedback on the material we read, watch, and enjoy. It’s the least we can do for those who word hard providing new content and enjoyment.

Do not be afraid to write a review. Reviews do not have to be as long as a dissertation nor does it have to be a summary of the book.

If you are pressed for time, a review can be as short as a few sentences. If you are starting out and you are unsure of how to complete a serious review, the “sandwich method” of reviewing is a good place to start. When following this method you can make the review as long as you wish or you can provide one or two quick sentences for each part.

Example: What did you like about the book? Something made you purchase the book, so there is something you like about it. Even if it was just the cover which caught your eye, there was a reason why you spent time reading the book.

What did you not like about the book? Be honest with yourself and the writer. If there is something you don’t like, how do you think it could have been better? Was this the first book of the author? Is this a topic you don’t like personally? Was the story good but not the editing? Was the editing great, but not the story development?

Then, the final part of the “sandwich” is what is the one thing another reader might enjoy about the book? What makes the book worth purchasing? Would you suggest this as a “beach book” on Kindle or a book for your personal library to be shared with others? Unless the book is just downright terrible in every way and even if the book is not your style, what is the one thing which another reader might enjoy?

If you have time and you really enjoy the book or author, upload images of yourself doing nice stuff while reading the book (on the subway, lying on the beach, sitting in your favorite chair, etc), a photo of your favorite passage (no more than one short paragraph), or even a photo of your new book placed beside your morning coffee. These “action” photos make others want to experience your happiness with you and increase sales of the book.

As readers (just like an audience at a play or a business meeting) we have a responsibility to the people on the stage or the authors of a book. Reviews are just one more way we can show our appreciation for those who work so hard to provide us with great entertainment every day.

Excuse me while I log-into my Amazon account and … take care of some stuff. Now that I know what I should be doing, I owe some reviews to some wonderful people.

Until next time… be safe, be kind, and always be happy.

 

 

Amy and Adam: War on Women. Why do people still think this isn’t a thing?

Amy and Adam: The War on Women.

Why do people still think this isn’t a thing?

The way Amy Schumer is being treated, after a confrontation with a fan, compared to the way The Rock and Adam Levine were treated by the public, after their fan confrontations, is just one more example of the War on Women.

Until a woman’s space and body is treated with the same respect as a man, I will continue to call it the “War on Women.”

I don’t give a flip about what she talks about in her comedy skits (both men have done much worse), her body and her time is just that, HERS! She is not owned by anyone and she owes nothing to the fans who demand it.

Adam and The Rock were supported by the public, even calling the perpetrator a criminal and said both men had every right to never talk to their fans again. many fans even gave solid advice on how and why both men should file many criminal charges on the man who attacked them.

On the other hand, a big man, comes rushing Amy, a year after her movie last year was used as the catalyst for a mentally unstable, misogynistic, jerk to murder and harm people in the theater. Not only was the shooter known to have long term mental issues and an arrest record of dangerous behavior, but he was on the radio spouting public disdain for women. Some of the listeners enjoyed his message, even supporting his radical views.

How can Amy trust anyone running up to her and demanding her attention with society continues to support people with views such as the shooter supported? She can’t.

After the incredibly hard year she has had (with death threats and sadness over the film shooting) she was terrified of the sudden man in her face, demanding her attention, yet, since this incident, she has been called a bitch, slut, and even worse names because of her comedy and her movies and that she “deserved” to be attacked and she was owned by the public. There have even been people (men and women) to state she should never act again if she can’t handle the pressure of people groping her and wanting photos with her. Many explanations include, “it was only a photo” and “she is making a big deal of nothing.” Really? A strange man rushing up to a woman in a grocery store parking lot, then demanding a photo with said woman, would be considered harassment and the police would be called.

This is the problem with society. Amy had a REAL horrific event happen in her life, where not only was her image and movie used by a mad man as the reason he committed murder, but she has spent a year being verbally attacked by society for how it was her fault for making such a trashy movie and “forcing” this man to make a statement about such movies. Again, let’s back up a few years to when radio stations put this crazy man on the air, and used his sexist ways to garner shock, awe, and laughter from the public. He was already known to be mentally unstable and maladjusted, but Amy gets harassed from the public concerning her comedy and her movies for being too lewd.

Does anyone have any idea how stupid that sounds? Not only is society victim blaming, but they aren’t even victim blaming the right person. She wasn’t even there. No one blamed Christian Bale for the Batman theater shooting (of course they shouldn’t), but many trolls blamed Amy for her role in making a really funny movie, showing an independent woman finding her way in life.

No one blamed Christian Bale for being the star in a movie showing a rich orphan taking justice in his own hands and outright killing bad guys. Of course they shouldn’t. It’s a movie. An insane lunatic decided to take away the spotlight from both Amy and Christian, and turn a moment of happiness into a moment of horror. This is on the killer, not on the actor and actresses.

No it’s not Amy fault a man entered a movie to shoot people and it’s not her fault she refused to take a photo from an obviously abrupt and disturbed man. Again, this man rushed to her and demanded a photo with her, then claimed he owned her and she owed him her attention. That is a clear sign of mental illness. Hell NO! She doesn’t owe him anything.

Let me put a myth to something, being a “Feminist” isn’t about hating men, it’s about educating society on the ways women are treated so differently than men (by men and even other women) that it makes my brain hurt.

So, let me set something straight here, no man nor woman, no matter how famous they are (or not famous at all), owes shit to anyone else unless they decide, on their own, to give the time to address the other person.

I’m going to say this again for those in the back, no one in life owes you shit! Not your mama, daddy, sister, brother, and certainly not the people who you’ve never even met before. When you see a woman (or a man) you would like to speak to, all manners apply, even when the person is super famous.

Let me explain it this way, even if a completely naked woman is walking down the street, screaming sexual speeches, has money attached to her body, and hundreds of people are getting excited by this site, she doesn’t owe anyone anything. A normal person would ask her for a photo, ask her if they could touch her, or ask her if they could be seen with her. Insane people (with no manners) assume what she is doing allows another person to enter her personal space and attack her.

One more time, no one owes anyone SHIT! Nothing. Nada. Zero. Capeesh?

If anyone, man or woman, comes rushing me and demands anything from me, I will tell that person right away, get the hell away from me, and never come back.

Amy has the same rights as anyone else on this planet. She is a person, not a thing.

I applaud her for how she has conducted herself this year and she has every right to be frightened of people (especially men) running up to her like the fan did. In fact, after all that has been thrown in her lap, I wouldn’t doubt if she has moderate PTSD, and society isn’t helping her by attacking her and harassing her even more. If she never made another public appearance, it wouldn’t be because she is weak, it would be because some people are assholes, and don’t deserve the right to see her light in public. She needs to care for herself, not the dicks of the world.

Amy, I support you. I know you are a fantastic person, working for women’s right everywhere, and I love what you are doing. If you never want to talk to another fan, I totally support that too.

Now, if everyone could please learn the rules we were all supposed to learn in Kindergarten, “Keep your hands to yourself”, I think the world would be a much better place.

 

Until next time… be safe, be kind, and always be happy!

(and for those who are dicks to celebrities, it’s simple, #stopbeingadick)

#heforshe #himforher #waronwomen #keepyourhandstoyourself #stopbeingadick

 

How I found myself in the medical marijuana movement

Get ready for some venting and the use of a few passionate words.
My involvement with the medical marijuana movement started from a very dark place, which still makes me angry. I normally don’t share these years with the public, but sometimes the origin story is necessary to understand the premise of the  passion.
As a staunch advocate for punishments for those involved in the illegal drug trade, I’ve had many people ask me, “How did I became a voice for medical marijuana?”
Simple. I was forced to see chronic pain from the other side.
I was forced into a position of chronic pain and I saw what true abuse of power can do to patients who need real help.
Do I still promote strong punishments for illegal drug trade? Oh yes! The people behind the Fentanyl pills, made to look like regular pain pills, which are killing people right now, should be held up as murderers.
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Those drug dealers are using the new CDC policies to prey on patients who are in pain and have been let down by their government and by their physicians. The drug dealers doing this are using the nationwide panic to purposely kill people with a medication needed by some people to survive. During the Tylenol scare of the 80s, the perpetrator was held up as the murderer, but when drug dealers are killing people based on new policies created by the CDC, the unsuspecting buyers, (the ones the CDC have hurt worse) are being held up as the guilty parties. In reality, it’s the CDC, who behind closed doors, used their infinite uncontrolled power to create criminals from chronically sick citizens (don’t we have enough people in prison in America without forcing normal citizens to become criminals just to survive?).
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The people who stand outside of schools to sell drugs to little children or those who get young girls addicted, only to use them for profit, should be put so far under the jail they should never see the light of day again. My position on those situations have never wavered.
When exactly did my position on medical marijuana change?
It happened while I was in the military. Due to many injuries, back issues, and chronic pain diseases, I was left in severe pain on a daily basis. I was allowed to suffer worse than a lost pet in the county kennel. I explained to my medical team what my goals in life were and what I needed to accomplish these goals. My new Physician Assistant (PA) allowed me to take pain medications for my diseases and I was able to function again. I could spend time with my children, I was attending grad school, conducting limited exercise, maintaining my weight, and working at G3 on my Army base. I was hurt and sick, but with the help of my PS, I was still rocking and rolling. I knew I was slowly making a comeback. Even if I wasn’t going to be 100%, I knew I was fighting this mess and my PA knew how to help me.
Then a new physician came in, CPT C. Brill, a total arrogant asshole if I’ve ever seen one. He wanted to become a holistic physician, so he requested and was approved for a large number of holistic classes, then he commenced to use his patients as his guinea pigs. Now let make this clear, we had no choice. We could not leave him as our physician. There was nothing  we, as his patients, could do about his actions, without causing ourselves even more harm. He was the only PA we were allowed to see, so any medical help we had, went through him. Each time someone complained about him, he would use his power to hurt that person even more. No matter how many complaints he received, he was the experimental holistic doctor on our base and his research (he was about to retire) would take him to the next step in his life. He did not care about his patients. His only care was for his career.
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Let me make it clear, there are some incredibly awesome holistic measures patients can use to help with their diseases; yoga, vitamins, massage, chiropractic medicine, meditation, and more. In fact, I participate in some of these activities when I am able. But when a medical professional forces patients, through lies, intimidation, and abuse of power, to participate in his experiments, then the entire reason for holistic medicine is negated. Bring forced to give up what works for something that doesn’t work (holistic or not) is not healthy for anyone and can cause irreparable harm. I’m not against holistic medication, I’m against the abuse of medical power by medical professionals in any form.
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The first month he took over for our old PA, he took all pain medications away from his patients, except those with deadly cancer. Even patients who had severe back issues, pins and braces in their body, shrapnel in their body, and men and women who suffered with chronic pain diseases and could barely get out of bed, were subjected to his outrageous claims of holistic practices alone treating these conditions.
He did not titrate his patients down, as an ethical PA should. No. He told his patients flat out they would follow his way, period. He came to our unit with an agenda and used that agenda to conduct painful procedures on the Soldiers assigned to his office. There was no reasoning with him at all. On top of his experiments, he also ignored and did not follow orders from real medical doctors, such as specialty physicians, from RA offices or Pain Management offices. Soldiers would come to him with records from capable, respected, Medical Doctors, but due to his position, he could ignore the orders. CPT Brill was an entity by himself, allowed to treat his patients as he wanted, even unethically. He was the epitome of abuse of power and an shining example of how military medical care is handled. The lack of voice Soldiers have concerning experiments that harm them and the military carrying out medical practices contrary to their medical needs is exactly why the Feres Doctrine has outlived it’s usefulness.
We were used as his study patients, no matter how much it negatively affected our lives.
The month he took my medication away I was in incredible pain. I started feeling the difference right away. My joints swelled up, I used my cane more, I dropped out of school, and I could barely get out of bed. My brain could not process the amount of pain I was feeling and started shutting down parts of my body to handle the pain in my vital organs.
My blood pressure soared, my blood tests results were scrambled, my face turned bright white many times, and I was dizzy from pain more often than I admitted in public. I honestly think the damage he inflicted on my body will never fully recover. Severe pain changes your DNA and how your brain processes pain and pain memory. I truly believe CPT Brill ruined any chance I had of making a decent recovery.
It was at that very moment, June 2013, I swore I would never allow a flipping arrogant asshole to have that much control over my life ever again. My life means too much to me, for myself and my children, to allow someone I barely knew, whom I did not approve of, to ever control my life 100% and to put me in a position where I could die and the trusted person would not care. I refuse to be just another number to some jerk who only cares about himself. I owed it to my children to fight for my life against someone who didn’t care about out future, but only his own.
How dare that asshole think he could experiment on me (and other Soldiers, some of whom wanted to take their lives due to the pain they were forced to experience) and think I would go quietly in the night. I may not have been able to move from his care, but I made my anger and dissatisfaction well known.
The problem was, no matter how many complaints Soldiers or I filed (or my family filed) our physical well being was not as important as the experiments the Army was allowing CPT Brill to do to us.
My pain became so grave, my right foot swelled up with CRPS (the most painful disease known to humans) and became paralyzed. The day before my daughter’s 25th birthday, another Doctor on FT Campbell took over my pain care and I was put in the ICU on a Ketamin drip. I missed my daughter’s 25th birthday because an arrogant CPT decided his career and his belief was more important than my life. Well, that would not do for me.
While he was on leave, April 2014, I made an appointment to see another Doctor, a real Doctor on post. She wasn’t the best, but one thing we both had in common, we both disliked CPT BRILL, so I was able to really talk to her about my pain and my right foot. Before my PA came back from leave, she arranged to have me as one of her experimental patients. Yes, I was again an experiment, but this was an experiment I had to agree to and I needed to agree to (at least I was given the choice this time). We had to move fast. We had to get approval, my agreement, and a secured bed before he returned. We did.
I was the very first Ketamin patient on our post. Within 3 days my pain had decreased, my foot was working again, the swelling had gone down, and blood flow returned. If it had not been for her I don’t know where I would be now. That three days of “pain vacation” was what I need to keep going just a few more months. I knew I could survive just long enough to escape his torture.
With all my medical paperwork and my retirement very quickly approaching, I was able to get a referral to a pain clinic to get help in the form of correct pain management, such as shots in my back, an upgraded TENS unit, and yes, medications.
I tell this story because, my fight for medical marijuana did not come to me because I was looking for something to do or because I want to get high (I have still never used MJ at all, even though I could pop over to CO or Washington), or because i want people to be able to get high with no consequences, even alcohol and cigarettes have consequences and they are legal.
I became involved in the movement because I saw how medical professionals can use their positions to harm patients in the worst way possible, they are allowed to watch them suffer and force the patients to beg for help which never comes. Some medical professionals, use their positions and attitudes towards something they are scared of and don’t understand, to justify treating patients as second class citizens and puppets in their own screwed up play.
I have seen first hand what physicians can do when they have full control of a patient’s health care. The bad ones do acquire the “god complex” so deeply ingrained, they can justify anything to force their way on their patients. I have seen first hand the suffering they inflict when only their limited knowledge on a subject is allowed to take control of their treatment of patients. This is especially true when the physician has knowledge that his patients have no options
I’m older, educated, I have confidence, and I’m very vocal about my health care and yet, I was still experimented on, against my will, and there was very little I could do about it. I was a prisoner and victim of abuse of medical power. So, what about the Soldiers and civilian patients who have no voice. What about the constant amount of patients, who are so afraid of breaking the law, they are killing themselves everyday instead of risk being arrested and making it worse for their family members. What about them? How can anyone say those patients, who are in severe pain, don’t deserve at least the same care and dignity we offer to dogs in a pound? Why are patients allowed to suffer with chronic pain and this seems to be an accepted course of action by the CDC and some physicians, when a pet in pain is allowed pain medication because to allow the pet to suffer would be inhumane? How does any of this make sense to any government agency?
When I left the military, I did end up with some really fantastic physicians. I worked hard to build the team I need to work with me as I go through this medical journey. I was once more accomplishing a few things normal people would just call living. I call it having a good day. With each passing month, I was slowly having a few more good days. Not only did I have to fight my diseases, but I also had to drag myself up from the damage inflicted on me by my “trusted” medical professional (unfortunately, he was not the first nor the last to let me down, but the most trusted one who damaged me more greatly than all the others).
It has been exactly 2 years since I was in the ICU and I’m finally gaining back what I lost through underhanded practices. I’m finally (again) on the road back to some sort of normal I can live with. It hasn’t been easy and I’ve worked hard to get here, fighting the some really stupid people every step of the way. This year, I actually danced for the first time in 5 years. That wasn’t because of some holistic treatment given to me by some arrogant physician assistant, trying to boaster his career, no that came from real medical help, in the form of a muti-specialty approach, including the correct and controlled application of various medications.
But, now, the CDC and the FDA have decided they wish to punish all patients and do a sweep of all pain medications from every patient, no matter what the condition of the patient or the judicial background of each patient. We patients are not treated as humans, we are treated with contempt and hatred that we dared survive and we dared to want a life worth living.
Again, I fight for medical marijuana because the CDC and the FDA do not put my life nor my family first in their decision. In fact, they even ignored some of the top rated physicians and made policies behind closed doors, to take control away from the patient and their physician, and give it directly to the CDC. My physician is a top rated physician, who works hard with his patients to allow them the best life they can live with the diseases they must face each and every day. Now he must turn control of his work over to whom ever the CDC deems appropriate for their goals. Not only does this put an extra burden on the patients but, when more physicians are added to the mix ( especially those directed by the CDC and not by the patient), the clear standard of care is lost between a Doctor and a patient. These new policies are doing nothing to punish criminals, but will do so much harm to patients. The CDC is allowed to approve some of the biggest discrimination policies in our nation. As chronic pain patients, we deserve treatment with dignity and respect, not abuse and suspicion.
Why am I a huge advocate of marijuana (all marijuana, even recreational), because I’m tired of government agencies (the CDC, the Army, the FDA) thinking my life, my family, and my future is a flipping game. I’m not a number. I’m a human who also happens to be a patient. I may live in constant pain, but by GOD, the more pain you leave me in with your stupid, outrageous policies, the louder I will get. There are millions of patients just like me. They suffer daily because of the games played with their lives. They sit in dark corners, they lie in bed, they hide from society, and some of them wish they could die. They are the chronic pain patients of our nation and they have rights too.
I’m not a number and I’m not a toy to be played with. The more pain you force on me the more I will fight you until my last breath. CDC, it’s been a long 2 years coming back from what CPT Brill did to me and I won’t give my life up again without a fight.
I have a voice and I’m not afraid to use it.
#patientsnotaddicts  @patientsnotaddicts 

Who let me adult? AKA The story of my big fat bloody shower

I’m so happy there are no cameras in my home. My life is insane at times.

Im done adultingAfter a headache yesterday and this morning, I finally felt well enough to take a warm shower.
While conditioning my hair, I was shaving my legs. I snipped the back of my ankle a little, but you would think I hit a flipping geyser. Forgetting I had conditioner in my hair, I stepped back a little to rinse off my ankle. The water from the shower made the conditioner run into my eyes. You would think conditioner isn’t supposed to burn, you would be wrong.

As I’m trying to get all the conditioner rinsed out of my eyes and mostly out of my hair, I’m trying to reach for a towel without getting blood from my ankle all over the floor. In the process of doing this, I lift my foot out to step out, but for a reason only known to Murphy, I banged my toe onto the side of the tub. I yelp, grabbing my toe, almost fall out of the shower, step out of the tub using the foot with the cut on it, and get blood all over my bathroom floor and the rug.

Finally, I get myself over to a dark Shaving creates murder scenetowel I threw on the floor; I stand on this while my ankle is bleeding all over the place. I also get a towel to wrap my greasy hair in (I never did finish rinsing my hair out).

As I’m really trying to get the mess under control (all I wanted was a flipping shower to make me feel better), I use the original towel I had in my hand to dry my body.

What I did not know is, while I was wrestling with this towel just a few minutes early, the bottom of the towel had rubbed against the cut, and had blood all over one side. As I wiped my body, I was wiping blood all over me, including my face, and because I was trying to remain on the dark towel due to my bleeding ankle, I didn’t know I looked like a victim in a murder scene until I stepped in front of the mirror to put lotion on and look for a band-aide.

At this point, my rug was bloody, my floor was bloody, and now my body was covered in streaks of blood. My left toe was hurting, so I was doing a little limp thing, and the towel on my head was falling off as if I had been running.

There I was trying to hold the bloody towel over my body until I can grab another one and hold the one on my head too. I finally drop the towel covering my body and let it fall to the floor, standing there naked as a Jay bird, this of course creates more bloody spots on the floor. I grabbed another towel and wrapped it around my body, but my body was still covered in streaks of blood.

Jason kills everyone

I swear, if anyone didn’t know better, they would have thought I just stepped off the set of one of the murder movies where women are caught in the shower and fight for their lives, like Bates Motel. I could have run out in the yard and it would have easily looked like I was being chased by Jason.

Sigh…. I took another shower, rinsed everything out of my hair, put a band-aide on my cut (I’ve nicknamed Old Faithful), and threw all the towels in a cold wash.

This all happened because I dared to shave my legs.

I’m finally sitting down in my recliner, resting after my ordeal.

I’m done today. I don’t know who allowed me to become an adult, but they grossly overestimated my abilities.

Until next time… Just be safe.

(seriously folks, keep me away from sharp objects, water, paper, and well, anything)